I had a great run this morning, seems like I am getting back to my normal pattern of seizures. I can’t believe that is a good thing! Apparently missing one dose of dilantin really through my system for a loop. My neurologist wants to check the dilantin levels in my blood, so I go back for another blood letting next week, this time I am going to make sure they do the cholesterol test for my GP. Anyway, my neurologist says we may want to increase to dose of dilantin or move me to another anti-seizure med. I am willing to give dilantin another chance with a change in dose or perhaps change in pattern of taking in. It does seem to help the seizures, but it certainly hasn’t gotten rid of them which is my main goal right now as far as the ms symptoms go.
So my morning run, I went for over 8 miles and had a small, small seizure at 4.5. I say small, small cause it was almost like it didn’t happen. I was thinking about when they would come on and then it hit. Did I manage to bring it on myself? Do I have them and not realize it at times? Lots of questions. I wish I knew more about it. My neurologist says their is a rare form of ms symptoms that come on in waves like mine. It is definitely not the norm. I just hope they go away soon either under dilantin or just through the normal course or relapsing/remitting ms.
So, as promised, cooling down. I usually run with a bandanna on to keep the sweat out of my eyes and bald head. After 6 miles I decided to remove it to see if the cool air would cool down my body and to see if that would have any effect on the seizures. It did seem to help them, I still had them but they were further apart then when I was wearing it and keeping the cool air from my pate. Something to try again. I also often wear a running hat, so I’ll try removing that as well. My hat is black, so perhaps it is time to replace it with a lite colored one. Ah yes, another excuse to buy more running gear…
Question. Is the Dilantin(sp?) for epilepsy, or something else. I ask this because my sister, used to be on this medication.
Or, is this being used for your MS?
Dilantin is used for epilepsy, but I am taking it to deal with the intermittent seizures that I have. My sister is a nurse and she says they also use it for a variety of situations where seizures are an issue.
My biggest problem with it is that while it is working to a certain (extent, it isn’t totally working. My neurologist wants to check the dilantin levels im my blood first, perhaps I need to again increase the dose) before having me switch to another med. Apparently dilantin is very good about mixing with other drugs, which isn’t a problem for me now as rebif is the only other drug I take, but it might be in the future as I deal with other symptoms.